About Rein In Sarcoma
Supporting
The Sarcoma Community
Rein in Sarcoma supports patients and families affected by sarcomas, a rare and often difficult-to-diagnose group of bone and soft tissue cancers that impact people of all ages.
Founded in Minnesota in 2001, we have grown into a nationally recognized foundation providing education, resources, and community support. We have invested more than two million dollars in innovative research and educational initiatives at leading medical institutions, including Cleveland Clinic, Mayo Clinic, the University of Minnesota, and Children’s Hospitals and Clinics of Minnesota.
About Rein In Sarcoma
Our
Story
Rein in Sarcoma was created by Karen Wyckoff in 2001 to raise awareness and fund cures for sarcoma cancers. The event, which is now our Annual Party in the Park, was held at the Cafesjian’s Carousel, located on the grounds of Como Park in St. Paul, MN. Karen died from Synovial Sarcoma a month after the first event was held. Since then, hundreds gather on a Monday evening in July to rein in sarcoma, and to celebrate Karen’s dream of “a world without sarcoma cancers”.
Through our actions we are sewing our own legacy; a legacy that will live on long after we are gone. No one can take away the memories and love that a person has left behind.”
-Karen Wyckoff,
Rein in Sarcoma founder
Our Team
The leaders of Rein in Sarcoma bring together diverse expertise and a shared dedication to the sarcoma community. Their work strengthens our mission and helps us provide hope, education, and support to those we serve.
Brendan Dillon
John Charlson, MD
Andrea Espejo-Freire, MD
Maureen Anderson
Laura Gagne
Jason Patalonis
Stephanie Terezakis, MD
Amanda Parkes, MD
Medical Director – Oncology, Early Development
University of Minnesota
L. Chinsoo Cho, MD, MS
Radiation Oncologist
Kathryn Dusenbery, MD
Professor and Department Head, Department of Radiation Oncology
Jutta Ellerman, MD
Associate Professor, Department of Radiology
Emily Greengard, MD
Assistant Professor, Department of Pediatrics, Division of Hematology, Oncology and BMT
Christian Ogilvie, MD
Oncology, Orthopedic Oncology
Stephanie Terezakis, MD
Professor, Department of Radiation Oncology
Mayo Clinic – Minnesota
Scott H. Okuno, MD
Oncology, Orthopedic Oncology
Steven I. Robinson, MBBS
Oncologist
Mayo Clinic – Arizona
Safia Ahmed, MD
Radiation Oncologist
Children’s Minnesota
Julie Chu, MD
Hematology-Oncology, Pediatric
Children’s Minnesota
Randy Hurley, MD
Medical Director Cancer Program, HealthPartners
Financial Information
Rein in Sarcoma is a 501(c)(3) nonprofit organization supported by a small professional staff and a dedicated community of volunteers. Our Board of Directors serves entirely without compensation and upholds strong governance practices to ensure integrity and transparency.
To safeguard the mission of RIS, the Board follows a “Conflict of Interest and Discharge of Duties” policy. If you’d like a copy of this policy, please reach out in the form below.
Rein in Sarcoma Annual Reports
2020 Annual Report
2019 Annual Report
2018 Annual Report
2017 Annual Report
2016 Annual Report
2015 Annual Report
Rein in Sarcoma 990 Forms
RIS-2023-990-form
RIS-2022-990-form
RIS-2021-990-form
RIS-2020-990-form
RIS-2019-990-form
RIS-2018-990-from
RIS-2017-990-from
9th Edition
Sarcoma Patient Guidebook
The Rein in Sarcoma Patient Guidebook was created to provide support, hope, trusted information, and valuable resources for those who are newly diagnosed with sarcoma.
- Clear explanations about sarcoma and treatment options
- Guidance on navigating appointments and care decisions
- Practical tips for patients and families
- Support resources and community connections
Awards
and Certificates
Our
Mission
Our three-pronged mission: educating the public and medical community about sarcomas, supporting sarcoma patients and their loved ones, and funding research directed toward developing new treatments and finding a cure for sarcoma cancers.
Education
Our programs increase awareness about sarcoma cancers among the medical community and the general public.
Support
We are dedicated to supporting sarcoma patients, survivors, and those who have lost a loved one to sarcoma.
Funding Research
We have funded over 2 million dollars in sarcoma research at top universities and medical institutions.
Education
Our education programs raise awareness about sarcoma within the medical community and the general public, helping improve understanding and early recognition.
Support
We are committed to supporting sarcoma patients, survivors, and families by providing trusted resources, education, and guidance. Our programs help individuals affected by sarcoma access information, share experiences, and find a supportive community throughout their journey.
Funding Research
We invest in groundbreaking sarcoma research at leading institutions, including Mayo Clinic and the University of Minnesota, helping advance new treatments and fuel hope for a cure.