Sarcoma Resources for
Medical Professionals
Working Together to
Improve Sarcoma Care
Rein in Sarcoma partners with physicians, researchers, and healthcare providers who care for patients with sarcoma. We offer referral tools, patient-friendly educational materials, and opportunities to engage in research and community education. Together, we can help shorten the time to diagnosis, support patients and families with reliable information, and advance progress in sarcoma care.
Research
and Collaboration
Rein In Sarcoma funds research at top institutions and fosters collaboration among leading sarcoma experts. Medical professionals are invited to join us in advancing knowledge and developing better treatments.
Collaboration Opportunities
Partner with Rein In Sarcoma to accelerate research and education.
For Medical Professionals
Rein in Sarcoma recognizes the importance of raising awareness and providing sarcoma education to medical professionals so early and accurate diagnoses can happen. We provide health care professionals with comprehensive information, research, and resources about sarcoma. Our resources are intended to introduce those who may be the first to see a patient with red flags of sarcoma and proper next steps.
For Students in Medical Professions
One of the ways we are raising awareness in the medical community is through lectures and presentations, as well as sharing resources with students pursuing careers in the medical field. Sarcoma experts present sarcoma basics and treatment overviews, while sarcoma survivors share their stories, to students during class lectures.
Accompanying print materials, including additional education resources and course objectives are available by contacting Rein in Sarcoma at (763) 205-1467 or by emailing us at admin@reininsarcoma.org
To request a speaker of materials, contact Rein in Sarcoma.
Partnering For Progress
Meaningful progress in sarcoma care happens when clinicians, researchers, and patient advocates work together. Rein in Sarcoma collaborates with healthcare professionals to support earlier diagnosis, share patient centered educational tools, and promote access to the latest research and clinical trials.
Through partnership, we can strengthen the care patients receive, support families during challenging moments, andhelp move the field toward better outcomes and new possibilities for the future.
Sarcoma Story – Dwight Soeffker
Undifferentiated pleomorphic sarcoma (soft tissue sarcoma)
Holiday Concert Benefits RIS
Ruth B
Malignant Fibrous Histiocytoma (MFH) aka Undifferentiated Pleomorphic Sarcoma (UPS)
Location:hand, arm
A Bright Spot for Long Term Survivor
Ruth Bachman
Malignant Fibrous Histiocytoma (MFH) aka Undifferentiated Pleomorphic Sarcoma (UPS)
Location:hand, arm
Sarcoma Survivor: Jody Johnson
Malignant Peripheral Nerve Sheath Tumor (Neurofibrosarcoma)
Location: leg
Describe an aspect of what you have experienced or learned during your sarcoma journey as a patient, survivor or loved one of someone who has/had sarcoma. Some prompts to help craft your story:
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- What was the most unexpected/surprising aspect of treatment?
- What was your most frustrating moment or experience?
- Were there any gestures of kindness that you will remember?
- Having been through what you have, and knowing what you know now- If you could go back in time and tell yourself one thing, what would it be?
- Are there any myths about cancer or treatment that you wish to dispel? Ideal story length is 350 – 450 words
Include one or two photos of the sarcoma patient/survivor. It works best to attach a jpeg format of the photo(s) to your email.
We highly appreciate the following as we’ve found newly diagnosed patients are very interested in reading stories of people with similar diagnosis.
- Type of Sarcoma
- Year of Diagnosis
- Area of body affected
Sometimes the diagnosis of cancer comes quickly, if a person has obvious symptoms and received prompt evaluation. However, diagnosing a new sarcoma can sometimes be challenging. Some reasons include:
- Will Rein in Sarcoma edit my story? Do you accept stories in formats other than written?
- If you would prefer to be interviewed and have one of our volunteers write the story, send us an email at marketing@reininsarcoma.org. If you would be willing to have your story in video, let us know — we can arrange filming in the Twin Cities.
- Can I request to have a story removed from your website?
- Yes, you can request to have it removed at any time. Please email us at marketing@reininsarcoma.org to have it removed.