Support Resources for Sarcoma Patients
We support
Patients & Families
Whether you have questions about synovial sarcoma, need support, want to get involved, or are looking for resources, we’d love to hear from you.
Have a general inquiry or need more information? Reach out to us and a member of our team will respond as soon as possible.
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Connect With Other Patients
Finding others who truly understand can make a meaningful difference. We provide safe, supportive spaces where you can connect with fellow patients, share experiences, and receive encouragement from people who have been where you are.
Join Our Facebook Patient Community
Our private Facebook group offers a welcoming environment to ask questions, talk openly about challenges, and connect with others who understand the emotional and practical parts of living with sarcoma.
Attend Patient Events
Rein in Sarcoma hosts gatherings throughout the year that bring patients together for support, learning, and community. Meeting others who share your experience can offer comfort and a renewed sense of strength.
Patient Resources and Tools
Our resources are designed to help you navigate your diagnosis and treatment with confidence. We focus on providing clear, trustworthy information and practical tools that support you from day one.
Research that Brings Hope
Rein in Sarcoma supports research that leads to better understanding, earlier detection, and improved treatment options for patients. Every study we help fund moves us closer to more effective therapies and, one day, a cure.
Sarcoma Resources
Rein in Sarcoma Patient Guidebook
The RIS Sarcoma Patient Guidebook is a comprehensive, easy-to-understand resource for patients and their families.
Questions to Ask Your Doctor
This resource was created by sarcoma survivors to help you and your loved one facilitate discussion with medical professionals. This is a valuable resource for patients and caregivers. Print to take to your appointments.
Biomarker Testing 101 – What is it & why it matters for sarcoma patients
Biomarker testing is a helpful tool if you’ve been diagnosed with sarcoma. It looks at specific parts of your tumor, like genes and proteins, to help your doctors understand your cancer better. This helps them make a more accurate diagnosis and choose the best treatment for you. Keep reading to learn more about biomarker testing and its role in the sarcoma journey.
GUIDE TO CLINICAL TRIALS
Clinical trials are research studies that test new treatments or procedures to see if they are safe and effective. These trials are essential for developing new therapies and improving existing ones. They are conducted in phases, each designed to answer specific research questions.
For Patients Facing Amputation
Dr. Edward Cheng of the University of Minnesota, presents moving stories of young people’s nervousness, courage, and optimism before and after amputation surgery in the treatment of bone sarcoma cancer.
Clinical Research
Trials
Read about some cancer centers that often list the clinical trials being conducted.
Sarcoma Support Directory
Find support groups and organizations for patients and families going through sarcoma.
Wellness and Mental Health Resources
Resources to help you manage stress and anxiety, and enhance overall wellbeing.
Financial, Legal, and Other Assistance
Find organizations and institutions that provide assistance for families and individuals facing financial, legal, and other hurdles due to cancer.
Wish Fulfillment Organizations
Organizations that provide chronically or seriously ill children and adults the opportunity to have a dream come true.
Wellness and Mental Health Resources
Resources to help you manage stress and anxiety, and enhance overall wellbeing.