For Patients & Families
Sarcoma
Support & Guidance
As you and your loved ones begin your sarcoma journey, we want you to know that you are not alone. Many patients feel isolated when facing a rare cancer, but there is a strong and caring community ready to walk beside you. Although sarcomas are uncommon, many individuals and families throughout the Midwest have experienced the path you are now starting.
Support
We provide emotional and peer support so patients, caregivers, and families feel understood and never alone in their sarcoma journey.
Education
We offer clear, trustworthy information that helps you learn about sarcoma, treatment options, and what to expect at every step.
Resources
We share practical tools such as the Patient Guidebook, checklists, and planning materials to help you stay organized and supported throughout care.
Connection
We create opportunities to connect with other patients, survivors, and caregivers through stories, events, and support groups that foster community and hope.
Understanding the Sarcoma Journey
From the moment symptoms appear through diagnosis, treatment, and recovery, the sarcoma journey can feel overwhelming. We help patients and families understand the steps ahead, prepare for key decisions, and know what questions to ask, so each stage feels a little more manageable.
Rein in Sarcoma Support Team
Do you have questions about your disease or treatment? Are you feeling scared or alone? We can connect you with a trained volunteer who’s been there.
Talk and Together Time
A monthly gathering of sarcoma survivors and their caregivers. Individuals share their stories, provide updates on their treatment, ask, and answer questions.
RIS Circle of Support Facebook Group
Connects those affected by sarcoma to offer support, ask questions, and share experiences.
Rein in Sarcoma Patient Guidebook
The RIS Sarcoma Patient Guidebook provides information and valuable resources for the newly-diagnosed sarcoma patient. You can order a paper copy of the notebook or download an electronic copy.
Sarcoma tote bags
The RIS Patient and Family Support Committee, made up of many members who are sarcoma survivors, decided that one way they could help newly diagnosed or relapsed patients was to have gift bags available for hospital nurses to give to these patients to show support in their battle against sarcoma.
Rein in Sarcoma Patient Guidebook
Rein in Sarcoma offers a small grant (Visa gift card) to sarcoma survivors in active treatment, managing chronic side effects or managing long-term/late term effects. If you are completing this form on behalf of a survivor, please enter survivor’s information.
Our gatherings are held year-round in the Twin Cities. They are a wonderful opportunity to meet and learn from others who are facing sarcoma. It is also a rare opportunity to get and give support. Our gatherings are free of cost for sarcoma patients, survivors, and their immediate families; as well as for persons who have lost a family member to sarcoma.
Check our calendar page to register for any of the events below:
Winter Gathering
Winter | January
An afternoon of community fellowship, storytelling, and education. Open to all Sarcoma patients, survivors, family, friends, and those who have lost a loved one to sarcoma.
RIS Party in the Park
Summer | July
Our picnic is held annually for sarcoma patients, survivors, and loved ones in conjunction with the annual Rein in Sarcoma Party in the Park event. Hosted by sarcoma doctors and..
Interested in getting involved with patient and family support activities?
The RIS Patient and Family Support Committee manages our support activities for sarcoma patients, survivors and their loved ones. The Committee is ran by volunteers—many who are sarcoma patients and survivors—and always welcomes new volunteers.