Support Resources for Sarcoma Patients

Rein in Sarcoma is

Here to Support You

Living with sarcoma can feel overwhelming, but you do not have to face it on your own. Rein in Sarcoma offers patient-focused resources designed to help you understand your diagnosis, make informed decisions, and find connection and support throughout your journey. Whether you are newly diagnosed, in treatment, or navigating survivorship, our resources are here to guide and uplift you.

Connect With Other Patients

Finding others who truly understand can make a meaningful difference. We provide safe, supportive spaces where you can connect with fellow patients, share experiences, and receive encouragement from people who have been where you are.

Join Our Facebook Patient Community

Our private Facebook group offers a welcoming environment to ask questions, talk openly about challenges, and connect with others who understand the emotional and practical parts of living with sarcoma.

Attend Patient Events

Rein in Sarcoma hosts gatherings throughout the year that bring patients together for support, learning, and community. Meeting others who share your experience can offer comfort and a renewed sense of strength.

Patient Resources and Tools

Our resources are designed to help you navigate your diagnosis and treatment with confidence. We focus on providing clear, trustworthy information and practical tools that support you from day one.

Research that Brings Hope

Rein in Sarcoma supports research that leads to better understanding, earlier detection, and improved treatment options for patients. Every study we help fund moves us closer to more effective therapies and, one day, a cure.

Sarcoma Resources

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Rein in Sarcoma Patient Guidebook

The RIS Sarcoma Patient Guidebook is a comprehensive, easy-to-understand resource for patients and their families.

 

 

 

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Questions to Ask Your Doctor

This resource was created by sarcoma survivors to help you and your loved one facilitate discussion with medical professionals. This is a valuable resource for patients and caregivers. Print to take to your appointments.

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For Patients Facing Amputation

Dr. Edward Cheng of the University of Minnesota, presents moving stories of young people’s nervousness, courage, and optimism before and after amputation surgery in the treatment of bone sarcoma cancer.

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Clinical Research
Trials

Read about some cancer centers that often list the clinical trials being conducted.

 

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Sarcoma Support Directory

Find support groups and organizations for patients and families going through sarcoma.

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Wellness and Mental Health Resources

Resources to help you manage stress and anxiety, and enhance overall wellbeing.

 

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Financial, Legal, and Other Assistance

Find organizations and institutions that provide assistance for families and individuals facing financial, legal, and other hurdles due to cancer.

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Wish Fulfillment Organizations

Organizations that provide chronically or seriously ill children and adults the opportunity to have a dream come true.

 

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Wellness and Mental Health Resources

Resources to help you manage stress and anxiety, and enhance overall wellbeing.