by Vicki Strong (Leiomyosarcoma Survivor) “You have leiomyosarcoma. It is very rare and very serious,” my oral surgeon told me. “You need an oncologist immediately.” I had a slightly different experience than many first diagnosed with sarcoma — I had actually heard of the disease. A friend of the family had leiomyosarcoma, but we were…
This year the Winter Gathering focused on community member connectivity. Forty-eight people registered for our virtual January 31, Rein in Sarcoma Winter Gathering: Unmasking Hope: Embracing Sarcoma as a Teacher. Board members, Lisa Griebel and Michelle Kolling, led us with candid insight through a thoughtful discussion of what sarcoma teaches us. Participants connected in small…
The RIS Patient and Family Support Committee, made up of many members who are sarcoma survivors, decided that one way they could help newly diagnosed or relapsed patients was to have gift bags available for hospital nurses to give to these patients to demonstrate that they are not alone in their battle with sarcoma. Several…
More than 60 patients, survivors, and family members attended the January 26 Winter Gathering at Bachman’s Floral, Gift, and Garden Center in Minneapolis. In addition, the live-stream video of the event on Facebook reached over 2000 people (watch the replay). Highlights of the event include mindfulness exercises from the University of Minnesota’s Bakken Center for…
